2nd Annual COPD Awareness Night with New York Mets!

May 2nd, 2012 | Author: Fabiana Talbot

June 16, 2012 marks the second annual COPD Awareness Night with the New York Mets at Citi Field!  The Mets will take a stand against the third leading cause of death in the U.S. in honor of Bob Mandt, a Mets executive and employee of 50 years who lived with COPD.

Fans will have the opportunity to sit with sit together with family, friends, and fellow supporters of the COPD Foundation in designated Promenade Infield seats, with a portion of online ticket sales rebated to the COPD Foundation.  Volunteers will be on hand to distribute educational materials, and attendees can take a five-question pop screener to see if they are at risk for COPD.

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The Mets will go up against the Cincinnati Reds  for an exciting night of fun, awareness, and remembrance.  Buy your tickets today!

Details:

When: Saturday, June 16, 2012 at 7:15 pm
Where: Citi field, New York
Tickets: Promenade Infield – $40, Empire Suite – $180

Tickets can be purchased online at www.mets.com/copd

To purchase Empire Party Suite tickets, contact Manuel Pena at mpena@copdfoundation.org or 1 866-731-2673 ext 266

Speaker Presentations of COPD7USA and Second National COPD Conference Now Available Online!

April 27th, 2012 | Author: Katelyn Harding

Remember the December conferences last year? When the COPD Foundation and U.S. COPD Coalition hosted the COPD7USA Conference and Second National COPD Conference?

Well, now select speaker presentations in audio and/or ODF format are available for you to hear/view! Both organizations would like to thank all the volunteer faculty who traveled to Washington from across the United States and worldwide and have allowed their presentations to be made available free of charge in order to ensure the COPD Community can benefit from the conference proceedings.

Thanks to the world class faculty and engaged participants both conferences were a great success. The pairing of these two conferences ensured all members of the entire COPD community were represented and were able to share experiences and expertise.

WHAT TYPE OF INFORMATION IS AVAILABLE?

  • Audio recordings of select conference sessions
  • PDF files of select presentations
  • E-program book
  • E-abstract book

HOW DO I ACCESS THE CONFERENCE INFORMATION?

Conference Attendees:

Sign in using the same user name and password that you created to register for the conference. If you do not remember your username or password, click “forgot password.” You will not be able to create a new account using the same user name that you used in order to register for the conference.

COPD Community at large:

Create a new user name and password on the registration page and retain this information in order to view the conference content.

Volunteer Request

April 25th, 2012 | Author: COPD Coach

A Letter From the COPD Coaches

We would like to thank all of our readers for the great letters and comments for our Ask the Coach section. We hope that they have provided our readers with the information they need to be more proactive in their COPD management.

The COPD Foundation has since its early beginnings depended on and and benefited from the dedication and work of our volunteer base. The COPD Information Line was organized and staffed by volunteer COPD patients and caregivers as was our fulfillment department. Volunteering your time is a great way of getting involved, as well as allowing the opportunity to be in the forefront of current research and trends!

The Coaches Corner is a program staffed by volunteer patients and caregivers. Together we research and monitor the web for current information on COPD, answer correspondence from other patients and caregivers, and consult on articles for the COPD Digest. Participation in the program does not require a great deal of time, but can provide a lot of satisfaction. If you would be interested in participating in the program send us an email at coachescorner@copdfoundation.org or call our C.O.P.D. Information Line.

There are also other ways to volunteer your time. Our advocacy program continues to grow, and we are looking for patients and caregivers to fill a variety of roles. Most of the work of the advocates can be done at home, and only requires making occasional phone calls and writing letters. While the work is not intensive or time consuming, it is vital! Advocacy is the way that we allow our voices to be heard on national and state levels. Operation 435 is an effort to have representatives in every congressional district willing and able to voice concerns on emerging legislation impacting COPD. Even if you are homebound, this is a great way to help the cause. To participate or to get more information call our C.O.P.D. Information Line.

If you are more active, you might wish to participate in our COPD Foundation Speakers Bureau. We get requests from all over the country to participate in respiratory rallies, or to speak with professional groups. Unfortunately, we do not have the staff or resources to cover all of these events. If you would be willing to speak or participate in your local area, call Bill Clark, our Director of Patient and Community Outreach at (866) 791-2673 or email him at wclark@copdfoundation.org.

The search of new treatments and cures requires the work of everyone, and our COPD community continues lead the way. We sincerely hope that you will consider one or more of the opportunities we have described and become a member of our volunteer family! Once again, for more information on any of these opportunities call our C.O.P.D. Information Line at (866) 316-COPD (2673).

Best regards,

The COPD Coach

The COPD Shuttle: Journey to the Center of the Lung!

April 24th, 2012 | Author: Fabiana Talbot

The COPD Shuttle: Journey to the Center of the Lung, is a 20-seat, state-of-the-art mobile motion simulator, launched by the COPD Foundation in May 2010. The COPD Shuttle is designed to make viewers feel as if they are inside the body, offering a rare glimpse into the lungs, heightening their understanding of COPD, and providing a catalyst for thousands to seek assessment and treatment.  In 2011, over 10,000 individuals rode the COPD Shuttle.

Click here to view more pictures of the COPD Shuttle.

Watch our COPD Shuttle videos on Youtube!

For information about the COPD Shuttle, contact Janina Kowalski, jkowalski@copdfoundation.org, or call 1-866-731-COPD (2673) ext. 231.

Huffing and Puffing

April 20th, 2012 | Author: Janina Kowalski

One Woman’s Run Exemplifies for Mother’s Battle with COPD

On May 6th, Christina Vella is running a marathon in honor of her late mother, Rosalie Vella. For Christina, the run symbolizes her mother’s struggle with COPD.

“I run this event because every day my mom struggled for air and the 26.2 miles that I am huffing and puffing doesn’t even compare to what she went through in her last few days. I have also been interested in physical fitness and my mom always thought I was crazy [for doing it], so I know she would be shaking her head saying, ‘Your nuts doing this for me!’”

Christina describes Rosalie as loving, compassionate, funny, and hostess to countless family gatherings.

“My favorite memory would be of any family gathering that we would have at my parents’ house and my mom serving her famous spaghetti and meatballs. No one would ever come to my house without my mom shoving food in their face or asking if they wanted a sandwich,” she recalls.

Back row (left to right): Anthony Vella (father), Rosalie (mother), Anthony (brother), Maria (sister). Front row (left to right): Christina and Frank (brother)

“She was my best friend. Her laugh was contagious. She was such a tiny person but her personality and her spirit would light up a room. When she got really sick, it was never about her and her sickness, she always downplayed how badly she felt [because she didn't want me to] worry about her so much.”

Rosalie was diagnosed with COPD in her 50s. A visit to the pulmonologist and a chest x-ray later, she learned she had COPD.

Christina says as the years progresses, she saw her mom’s health deteriorate.

“After my mom was diagnosed with COPD, it progressively got worse. Her hospital stays became more frequent. She tried physical therapy, which seemed to help her, but even while performing the littlest of tasks she would become winded and have to sit down and rest. My mom was in her 60s, but the disease made her seem so much older,” she says.

COPD affected Rosalie physically and mentally.

“She became very depressed and we often encouraged her to join a COPD support group but she was ashamed of the disease since smoking for so many years ultimately led to her diagnosis.”

“This disease took the matriarch of our family. She is missing her grandchildren growing up and that kills me. This disease made me so aware of the dangers of smoking. It makes me want to help other people living with this disease. I would love to see more research done on easing symptoms and finding a cure.”

COPD research and a cure are reasons why Christina made running an opportunity to raise money for the disease.

“I want to see money going towards a cure. It is very easy to be involved with fundraising. Thankfully, my friends, family, and my co-workers are so supportive of me. My mom touched a lot of people’s lives and it brings me so much happiness to see how supportive they are of this cause.”

Inspired by Christina’s story? Please visit the COPD Foundation’s first giving page and create your own fundraising project!

Remember, what you do today can help others breathe better tomorrow!