Posts Tagged Alpha-1

Alpha-1 Awareness: #AreYou1?

November 24th, 2014 | Author: Katelyn Turner

At least 100,000 Americans live with Alpha-1 Antitrypsin Deficiency (Alpha-1), but fewer than 10% have been diagnosed. Alpha-1 is the most common known genetic risk factor for emphysema. Are you 1? That is the question the Alpha-1 Foundation is asking YOU for COPD/Alpha-1 Awareness Month.

Take part in the  Alpha-1 activities happening this month!

  • As part of the “I am 1. Are you?” awareness campaign, the Alpha-1 Foundation wants you to record a video of yourself or a loved one and post it on Facebook and/or other social media sites. Make sure to use the hashtag #AreYou1 and include a link to

  • Participate in the Alpha-1 Art Auction! In November 2013, NASCAR drivers showed their artistic side for Alpha-1 Awareness when they created art alongside children living with Alpha-1. Now you have a chance to bid on their creations! Proceeds will benefit the Alpha-1 Foundation’s research programs.

Take a look at the artwork and participate in the auction here.

Spread the word about Alpha-1 by downloading the fact sheets below and sharing with friends and family. Don’t  forget to ask – #AreYou1?

Fact Sheets:

Mind Over Matter

July 19th, 2013 | Author: Katelyn Turner

Kim Lynch says when she was diagnosed with COPD 10 years ago, Read more…

On Rare Disease Day, patient advocates fear major US healthcare budget cuts

February 28th, 2013 | Author: Katelyn Turner

Did you know that today is Rare Disease Day? Read more…

May is Asthma Awareness Month

May 4th, 2012 | Author: Katelyn Turner

Did you know that May is Asthma awareness month? Read more…

Pilot Study to Improve Indoor Air Quality

March 9th, 2012 | Author: Katelyn Turner

Recently, a group of individuals with COPD and Alpha-1 participated Read more…

Living Life to the Fullest

February 10th, 2012 | Author: Katelyn Turner

Chris Huckstepp says he first noticed deterioration in his lung function in 1994. Read more…

Be Your Own Advocate!

January 20th, 2012 | Author: Katelyn Turner

In Ken Samonds’s eyes, wife Carolyn, Read more…

Out of Breath

October 28th, 2011 | Author: Katelyn Turner

Elaine Bray, who was diagnosed with Alpha-1 Antitrypsin Deficiency in 2003 Read more…

Overcoming Challenges

October 21st, 2011 | Author: Katelyn Turner

Sheila Favazza was diagnosed with COPD in 1986 at the age of 38. Read more…

Learning to Breathe Again

October 14th, 2011 | Author: Katelyn Turner

In 1998, Ray Maybury was found to have Panniculitis Read more…