Posts Tagged caregiving

Jane’s Digest—Bronchiectasis: I Will Love You Always

April 13th, 2012 | Author: Jon Haas

This is the last part in a series. It was written by Jon Haas, who lost his wife Jan March 26, 2009 to Bronchiectasis.

The saddest part was when the doctors came to me and said Jane had 24 to 36 hours to live. I wore the same clothes for the next three days; never leaving her side and I wore the tie I was married in from September 29, 1984—our wedding day. I slept in the recliner next to her bed as usual. The day before she died she was given small doses of morphine since her kidneys were starting to deteriorate and her anemia was worse.

Favorite of Jane known as “I Love You Always” – Taken December 17, 1994

The morphine slowed her down and tended to allow her to be comfortable.  The day before she died I didn’t talk to Jane but she knew I was there.  When she would wiggle her foot under influence of the morphine; she did it at a much slower rate than she had before.  Her toes and upper foot would move in the same pattern only not nearly as fast. She was totally aware of what was going on in the room and wanted me to know. The day she died the doctors and counselor came in to tell me about 10:30AM they wanted to remove all the equipment and let Jane go peacefully.

This was something Jane had decided earlier that month, and that we had agreed upon with our family attorney. She did not want to be resuscitated or supported in a vegetative state, should that come to pass.

About 6:30AM the doctors said to start Palliative care again and they were not going to treat her any longer.  My response was that they had to be sure. They doctors said they were sure.

When Jane passed, I immediately touched her right arm and started saying “The Lord’s Prayer” as both nurses huddled with their arms around me and prayed.  The female RT who was so close to Jane, came in and hugged me a long time and cried.  A number of the other nurses came in and did the same. They said there was nothing I could do (anymore) and that I agreed and said, “I did everything I could possibly do for Jane”.

I cried at that time and it was a very sad time in Room 816. Jane fought with as much conviction, strength and determination as she could muster each and every day.

After she passed, the doctors and hospital staff had a lot of trouble adjusting to the fact she was gone. I participated in moving Jane to the 2nd floor morgue.  I felt it a little odd; but was grateful to have a chance to “be alone” with Jane once last time.

The day I buried Jane, I felt incredibly drained and terribly broken hearted.  A sense of peace came over me however, as a said “a final goodbye” to my wonderful Jane one last time.

Stronger Than We Think We Are

March 2nd, 2012 | Author: Katelyn Harding

Shirley Mazzucotelli lost her partner of 15 years, Bill Wellman, to COPD in January 2010.

Bill & Shirley

“He told me that I was the best thing that ever happened in his life. I want people to be aware that they need to put that cigarette down. He tried, but his addiction was still there,” she says. “As hard as it hurt, I hung in there and saw him through until the end. I think we are stronger than we think we are, and we have more courage than we think we do.”

Mazzucotelli, who was his partner beginning in 1994, says Wellman began smoking at the age of 15, and quit only a year before he passed at the age of 67. She was his caregiver for the last four years of his life, experiencing firsthand the progression of the disease.

“He smoked about a pack a day, and nothing worked [for him to quit]. He began to get a shortness of breath around 2006, and he got anxiety and would think he was having a heart attack,” she says of Wellman, who also battled depression.

Mazzucotelli wanted to share Wellman’s story because she wants to emphasize the negative aspects of smoking.

“I knew what COPD was, I had seen patients with it on oxygen gasping for breath, but I had never experience it firsthand.”

She says that he would feel isolated at times, although she was there.

“He could drive at times, and then he wouldn’t be up for it. He got weak and I’d have to help him out of his chair, and I did the cooking, etc. I just did whatever was necessary. I helped him and he tried to be as independent as he could be, even until the night he passed away,” she says.

“We had to just take things one day at a time. I was there for him and encouraged him as much as I could.”

Being There For a Loved One

November 4th, 2011 | Author: Katelyn Harding

This blog post was written by Jennifer Jafelice, dedicated to her mother, Read more…

Concerned Caregiver

July 6th, 2011 | Author: Katelyn Harding

Dear Caregiver Coach,

When I take my wife to her pulmonary doctor, Read more…

Taking Care of the Caregiver

June 29th, 2011 | Author: COPD Coach

Dear Caregiver Coach,

I work in order to provide income, and am also the caregiver Read more…

Feeling Guilty as a Caregiver

June 22nd, 2011 | Author: COPD Coach

Dear Caregiver Coach,

I find that being a caregiver is a very hard job! Read more…

The Moments That Keep You Going

November 5th, 2010 | Author: Katelyn Harding

Sherry Stover quit smoking as a promise to her 12-year-old daughter, and Read more…