Posts Tagged COPD awareness

2012 COPD Proclamation Update

December 4th, 2012 | Author: Aimee Bulthuis

The COPD community had a very successful COPD Awareness Month thanks to all of your advocacy work!  From Washington to Florida, COPD advocates have been visiting with elected officials, conducting letter writing campaigns, participating in awareness events, and spearheading social media activities–resulting in a record number of states passing COPD legislation this year!

This year 46 states passed COPD legislation; primarily governor proclamations and legislative resolutions announcing November 2012 as COPD Awareness Month.  Advocates from across the country mobilized to submit proclamation requests to 47 governors from across the country and successfully received 43 governor signatures. These proclamations help raise COPD awareness throughout the states and often introduce elected officials to COPD and its effects in their state.  To help keep the momentum going, advocates also wrote to their local newspapers thanking the governor for passing the proclamation and encouraging the community to learn more about COPD.  Next year, our goal is to pass governor proclamations in all 50 states to blanket the nation with COPD awareness.

State legislatures also stepped up to help spread COPD awareness by passing resolutions announcing November as COPD Awareness Month or, in New Mexico, Massachusetts and Hawaii’s case, direct the state health department to create a COPD working group or commission to create state-wide COPD prevention strategies and develop education and awareness tools. This type of legislation is a great leap forward but it is up to you, the COPD community, to keep the pressure up by staying loud and involved!

In addition to the passage of a record number of proclamations and resolutions, the Centers for Disease Control and Prevention released the first ever state-specific COPD data from the Behavioral Risk Factor Surveillance System (BRFSS) in the November 23rd issue of the Morbidity and Mortality Weekly Report.  Due to outstanding advocacy efforts in 2010, the BRFSS included COPD in its 2011 survey for the first time to determine its prevalence, collecting data monthly in all 50 States, the District of Columbia, Puerto Rico, the US Virgin Islands and Guam. For the first time, we now know which states have the highest prevalence rates (Kentucky with 9.3%) and which have the lowest (Puerto Rico, Washington and Minnesota).  We also know that COPD was reported more inwomen, those with asthma, and those with lower income levels.  For more information on the BRFSS or to see where your state ranks click here.

Our advocacy activities in 2012 have been strong and have built  great momentum, let’s keep up the good work going into 2013! Now that we have this new BRFSS data and 47 states have passed COPD legislation, let’s keep up the pressure to improve the lives of everyone affected by COPD.

Let’s set a goal to pass proclamations in all 50 states, grow our advocacy numbers by getting your friends and family involved, and use the COPD Action Center like never before, flooding your elected officials with letters asking for action on COPD policy issues! Alaska, Rhode Island and South Carolina were the only states that did not successfully pass COPD legislation; if you live in one of these states we especially need you! We need you to help us make COPD a priority in your state next year so we can reach our goal of achieving COPD action in all 50 states.

Great work in 2012 advocates! Let’s keep it up as we bring in the new year!

What We’re Thankful For

November 21st, 2012 | Author: COPD Coach

Dear Coaches Corner Readers,

We are going to depart from our usual format this week and instead of answering your letters, we instead wrote a letter to you. Tomorrow is Thanksgiving and in honor of the holiday, we wish to take a moment and offer our thanks to all of you. Through your encouragement and your concerns you keep us focused toward finding better ways of promoting awareness, and give us a renewed drive to identify those yet to be diagnosed, encouraging new treatments, but most importantly, someday finding a cure.

People impacted by COPD have many things to be thankful for this year. A recently completed  COPDGene® Study is now in the evaluation stage. It is our hope and belief that this study will offer new and exciting insights as to the mechanisms that cause COPD which will in turn offer new and exciting treatments–and hopefully one day a cure! The COPDGene® Study will offer a wealth of information to researchers to steer their research in new directions.

We have made great gains in establishing a COPD Qualification Biomarkers Consortium that will allow for new and better treatments, enabling new drugs to be developed and available much sooner. Now that COPD has been established as the third leading cause of death in the U.S., our advocacy efforts continue to increase exponentially with more people with COPD becoming individually involved encouraging our leaders to fund more research, provide better access, and pass laws the enhance our rights to quality medical care.

From indiedesign.com

New educational materials have been developed for our COPD constituents and their professionals. Our new version of the Big Fat Reference Guide has been translated into more languages, and will soon become a worldwide tool in COPD education. In the last month we inaugurated the Pulmonary Education Program (PEP), which will allow individual pulmonary rehabilitation programs to partner with the COPD Foundation in encouraging participation and improving outcomes.

As a result over concerns of readmission following severe exacerbations, we are working with the healthcare community to develop new tools to reduce readmission. By offering new information on how to spot early signs of exacerbations people with COPD and their caregivers will have the tools they need to safeguard their health.

We are excited and thankful for the many manufacturers who are now developing new technology that not only improves our quality of life in general, but also helps improve our disease management, and dramatically addresses our mobility.

We are thankful for the many researchers who have dedicated their lives so that we and future generations will never have to experience a life of COPD. The advances and discoveries they make daily are as extraordinary as they are encouraging, and offer us true hope for the future.

The DRIVE4COPD campaign continues to spread COPD awareness across the country. The designation of COPD as the official health initiative of NASCAR™  will further increase early detection and produce better outcomes for those diagnosed.

To date, over 2.5 million individuals have been screened for COPD through the DRIVE4COPD campaign.  We are pleased to announce that we have launched the 5 question COPD Risk Screener on WebMD.  The COPD Risk Screener  asks consumers a series of questions related to breathing in order to help individuals identify if they are at risk for COPD.  

The launch of our new website will soon provide our community with an easily navigated knowledge base that will not only address what COPD is, but goes much further by providing quality information on daily management. Our COPD Digest magazine and Lung Health Professional magazine have expanded their subscription bases to keep our community up-to-date on the latest news and concerns impacting our health. Our recent acquisition of the Journal Of COPD will disseminate information to professionals and researchers to enable them to focus their efforts through shared discoveries.

Our biggest thanks should probably be for our caregivers who put their lives on hold to help us make our dreams possible.

This past year has been one of many gains, but with each gain, we are reminding of just how far we have to go. But is the past year has been anything, it has been one of possibility. Each year takes us closer to a cure and a hope that someday soon, a foundation such as ours will no longer need to exist!

Through our Coaches Corner letters, we have always stressed the importance of attitude and outlook. People with COPD strive to maintain a strong quality of life. Having COPD allows us a new appreciation of our lives and the ability to treasure those who share in our journey. That is a gift beyond measure. The COPD Foundation is truly blessed and thankful to be a part of this community. Your thoughts needs and concerns are the fuel that keeps us going.

For this Thanksgiving, we ask you to take a moment and use our forum by posting a comment of what you are thankful for this year. Please feel free to use this opportunity to thank someone who has impacted or who has brought or continues to bring meaning to your life.

With sincere wishes for a happy Thanksgiving!

The COPD Coach

Ask the Expert is aimed at providing information for individuals with COPD to take to your doctor, and is not in any way intended to be medical advice.

If you would like to submit a question to the Coaches Corner email us atcoachescorner@copdfoundation.org. We would love to hear your questions and comments. You can address your emails to any of the following: COPD Coach, Caregiver Coach, COPD Doctor or COPD RT.

Introducing our COPD Advocacy Drivers Program!

November 12th, 2012 | Author: Aimee Bulthuis

We are pleased to announce our COPD Advocacy Drivers Program!

This 30 minute advocacy video trains participants to be effective COPD advocates by providing tips for successful interactions with elected officials, training on the COPD Action Center, a review of civics 101, and an overview of our advocacy activities and goals.  At the end of the video participants are prompted to take a 5-question quiz and upon successful completion participants receive their COPD Advocacy Drivers License which certifies them as trained COPD advocates.

The purpose of the COPD Advocacy Drivers Program is to increase the effectiveness of our existing advocates and recruit new advocates.  As always, if anyone you encounter expresses an interest in advocacy please provide them my contact information but now also direct them to the online COPD Advocacy Drivers Program.

Click here to access the COPD Advocacy Drivers Program!

Getting Involved To Honor Her Family

August 17th, 2012 | Author: Katelyn Turner

Robert and Doris Reicherter met in high school, when he was 17 and she was 15. Read more…

Help Educate Others About COPD

June 13th, 2012 | Author: COPD Coach

Dear COPD Coach,

I have COPD and I was recently put on oxygen, Read more…

Speaker Presentations of COPD7USA and Second National COPD Conference Now Available Online!

April 27th, 2012 | Author: Katelyn Turner

Remember the December conferences last year? Read more…

Volunteer Request

April 25th, 2012 | Author: COPD Coach

A Letter From the COPD Coaches Read more…

Huffing and Puffing

April 20th, 2012 | Author: Janina Kowalski

One Woman’s Run Exemplifies for Mother’s Battle with COPD Read more…

Participate in the Inaugural DRIVE4COPD Pro-Am Celebrity Racing Challenge!

March 1st, 2012 | Author: Katelyn Turner

Place a Bid For Your Chance to Take Part in This Exclusive, Once-in-a-Lifetime Event Read more…

Two Peas in a Pod

February 17th, 2012 | Author: Janina Kowalski

A Mother’s struggle with COPD teaches her daughter perseverance Read more…