Posts Tagged COPD awareness

Make Your Ripple

March 24th, 2014 | Author: Katelyn Turner

Despite being the third leading cause of death in the U.S., COPD is still unknown to many people. Bhavya Malladi and her grandfather, Evani RJ Rao, were among those people when he was diagnosed with COPD in October 2012. Upon his diagnosis, the lack of awareness and knowledge of such a devastating disease shocked Bhavya. She has since made it her mission to educate people around her so that no one else she loved would have to suffer the way her grandfather is.

Evani, 70, spent his life working as a hydro-geologist in India, and was exposed to dust from open field drilling. Although he quit smoking at the age of 53, Bhavya attributes the toxic fumes from his job and 20 years of smoking to her grandfather’s diagnosis. Within a year of being diagnosed, his condition drastically worsened. As she lives in California, and her grandfather lives in India, long phone calls with him have unfortunately become a thing of the past, because simply talking for a long period of time is too exhausting for him.54294429-58e7-4663-a573-6dd5ac829dd3

A fond memory she holds of Evani are long walks with him and her brother to a local candy store in India where they would buy their favorite chocolates and candies. They would walk back home while listening to him tell stories of India. As the years have progressed, this tradition has become impossible for Evani.

Seeing this debilitating disease progress so rapidly, Bhavya began to ask herself, “Why is it still so unfamiliar to people?” Bhavya has decided to honor her grandfather by making a difference.

“Never underestimate the difference you can make. Remember, even a tiny drop can make ripples,” she says.

When her Rangapravesam, an Indian classical solo dance debut, approached, she decided to make a ripple. (Bhavya has been learning an Indian Classical dance form called Kuchipudi since she’s been five. Rangapravesam is an event when the teacher introduces the student to a bigger audience. This event is a student’s solo repertoire two hours long, with a live orchestra.)

In lieu of flowers and gifts for her performance, she asked her guests to donate to the COPD Foundation through her online fundraising page on FirstGiving. She included a small pamphlet in her invitations, and also set up an information booth with COPD brochures for the 500+ attendees. This was her opportunity to spread awareness in her own way.

Bhavya’s ultimate goal is “to spread the word about this disease, so people know about it and take care of it in its early stages,” something they could not do for her grandfather.

To date, she has raised $3,428 for the COPD Foundation’s efforts to spread awareness, educate members of the community, and to one day find a cure.

You too can do your part and make your ripple. Contact the COPD Foundation to find out how you can set up your own Firstgiving fundraising page and make a difference just like Bhavya continues to do.

Please call 1-866-316-2673 or visit: www.COPDFoundation.org for more information.

Pennies for Penny

October 29th, 2013 | Author: Katelyn Turner

Nicole says her mom Penny was a fighter—someone who never let COPD get in her way.

“I never saw her suffer, or just laying in her bed. The day before my mother passed, we were watching a Browns football game together. She was wearing a Browns t-shirt and hat, and it was 14-0 [Browns were losing], fourth quarter. All she kept saying was, ‘the Browns still have a chance to win,’” Nicole recalls. “She was in such good spirits right up until her last days.”

After her mom passed away, Nicole felt as though she had to do something to honor her.

Nicole and Penny

Nicole and Penny

“My desire has always been to give back, and do something for people who had COPD. I saw how the disease took over my mother and I wanted to do something to support those [living with COPD],” Nicole says.

That’s where “Pennies for Penny” was born—out of Nicole’s desire to help others. She reached out to friends, family, and co-workers to garner feedback, and created her first fundraising tools, a Bingo game that features sayings from Penny, and a Penny trivia game. Nicole used these at her first fundraiser September 28th. She’s planning on hosting a second fundraiser, a pancake breakfast, during November—COPD Awareness Month.

In addition to hosting fundraisers, Nicole, who lives in Cleveland, OH, says she also set up a FirstGiving Page with the COPD Foundation, encouraging friends, family, co-workers, etc. to donate what they can.

“I want to do something all year-round. Cleveland Clinic is a big hospital here, and I’ve been thinking I’d eventually like to work at the pulmonary department there. I am looking to work in public health, once I complete school,” Nicole says. She’s currently majoring in business management as a local community college.

She says her mom loved to spend time with family, including Nicole’s children Butchie and Eleah, and made others so happy—so it’s nice to see others step up in memory of her.

“That’s why I want to go into public health to help people like my mom—I want to follow my vision and make it happen,” Nicole says. “I think anything starts off with a  vision. If you have the passion to do it, your vision will come to you.”

“I had no idea what to do when my mom passed. First, it was like, ‘she’s no longer here.’ After that, I thought, ‘let me do something to honor my mom,’” she says. “I miss so many things about her, but my love and compassion keeps me going.”

2012 COPD Proclamation Update

December 4th, 2012 | Author: Aimee Bulthuis

The COPD community had a very successful COPD Awareness Month thanks Read more…

Introducing our COPD Advocacy Drivers Program!

November 12th, 2012 | Author: Aimee Bulthuis

We are pleased to announce our COPD Advocacy Drivers Program! Read more…

Getting Involved To Honor Her Family

August 17th, 2012 | Author: Katelyn Turner

Robert and Doris Reicherter met in high school, when he was 17 and she was 15. Read more…

Speaker Presentations of COPD7USA and Second National COPD Conference Now Available Online!

April 27th, 2012 | Author: Katelyn Turner

Remember the December conferences last year? Read more…

Huffing and Puffing

April 20th, 2012 | Author: Janina Kowalski

One Woman’s Run Exemplifies for Mother’s Battle with COPD Read more…

Participate in the Inaugural DRIVE4COPD Pro-Am Celebrity Racing Challenge!

March 1st, 2012 | Author: Katelyn Turner

Place a Bid For Your Chance to Take Part in This Exclusive, Once-in-a-Lifetime Event Read more…

Two Peas in a Pod

February 17th, 2012 | Author: Janina Kowalski

A Mother’s struggle with COPD teaches her daughter perseverance Read more…

24M: The DRIVE4COPD Monument

September 9th, 2011 | Author: Katelyn Turner

DRIVE4COPD has announced the unveiling of 24M: The DRIVE4COPD Monument, Read more…