Posts Tagged COPD education

Volunteer Request

April 25th, 2012 | Author: COPD Coach

A Letter From the COPD Coaches

We would like to thank all of our readers for the great letters and comments for our Ask the Coach section. We hope that they have provided our readers with the information they need to be more proactive in their COPD management.

The COPD Foundation has since its early beginnings depended on and and benefited from the dedication and work of our volunteer base. The COPD Information Line was organized and staffed by volunteer COPD patients and caregivers as was our fulfillment department. Volunteering your time is a great way of getting involved, as well as allowing the opportunity to be in the forefront of current research and trends!

The Coaches Corner is a program staffed by volunteer patients and caregivers. Together we research and monitor the web for current information on COPD, answer correspondence from other patients and caregivers, and consult on articles for the COPD Digest. Participation in the program does not require a great deal of time, but can provide a lot of satisfaction. If you would be interested in participating in the program send us an email at coachescorner@copdfoundation.org or call our C.O.P.D. Information Line.

There are also other ways to volunteer your time. Our advocacy program continues to grow, and we are looking for patients and caregivers to fill a variety of roles. Most of the work of the advocates can be done at home, and only requires making occasional phone calls and writing letters. While the work is not intensive or time consuming, it is vital! Advocacy is the way that we allow our voices to be heard on national and state levels. Operation 435 is an effort to have representatives in every congressional district willing and able to voice concerns on emerging legislation impacting COPD. Even if you are homebound, this is a great way to help the cause. To participate or to get more information call our C.O.P.D. Information Line.

If you are more active, you might wish to participate in our COPD Foundation Speakers Bureau. We get requests from all over the country to participate in respiratory rallies, or to speak with professional groups. Unfortunately, we do not have the staff or resources to cover all of these events. If you would be willing to speak or participate in your local area, call Bill Clark, our Director of Patient and Community Outreach at (866) 791-2673 or email him at wclark@copdfoundation.org.

The search of new treatments and cures requires the work of everyone, and our COPD community continues lead the way. We sincerely hope that you will consider one or more of the opportunities we have described and become a member of our volunteer family! Once again, for more information on any of these opportunities call our C.O.P.D. Information Line at (866) 316-COPD (2673).

Best regards,

The COPD Coach

COPD Big Fat Reference Guide!

March 6th, 2012 | Author: Fabiana Talbot

Good health is more than just the lack of disease. In truth, it depends on many factors, including physical traits we are born with, the risk factors to which we are exposed, and the choices we make in our daily lives.

Choosing good health means more than finding good health care providers. Many would say our daily habits have a greater impact than the medical care we get from time to time.  However, we must remember that the small positive steps we put into our daily lives can greatly affect our health.

The COPD Big Fat Reference Guide (BFRG) is here to provide you information and access to resources to help you learn to LIVE with COPD. COPD affects approximately 24 million Americans and about 210 million people worldwide . . . so you’re not alone. Here we offer you a place with all the information you need about talking to your doctor, making sense of the medications, ideas for healthy eating and living, and much more.

To access the full content and all the special features of this website, register for free here. By registering, you’ll be able to read all that the BFRG has to offer, bookmark your favorite pages, print them for your doctor, and be the first to know of any new sections or updates!

What is COPD?

February 24th, 2012 | Author: Katelyn Harding

Sandra G. Adams, MD, MS who received the Distinguished Scholar Award in Respiratory Health from the Chest Foundation, created these videos for healthcare professionals, nurse practitioners, medical assistants, COPD educators, etc. as part of a project entitled WIPECOPD (Web-based Interactive Professional Education in COPD).

Dr. Adams is an Associate Professor of Medicine in the Pulmonary/Critical Care Division at The University of Texas Health Science Center at San Antonio and The South Texas Veterans Health Care System, says each video has great instructions for both the patient and clinician.

“I’m interested in getting more patient information out there. And this is very useful for patients,” Adams, who is also a member of the Clinical Advisory Committee for the COPD Foundation, says. “We wanted to have a series of videos for patients that would be helpful [in every day use].”

A Call to Action!

January 17th, 2012 | Author: Fabiana Talbot

Every year, the Centers for Disease Control and Prevention’s (CDC) National Center for Health Statistics (NCHS) releases the “National Vital Statistics Report.”  The report draws information from shared inter-governmental resources to determine the nation’s rates of birth, marriage, divorce, and most notably, death. 

According to the 2010 statistics released on January 11, 2012, COPD remained the third leading cause of death in the U.S. — with diagnoses increasing 16 percent per year.  It is estimated that 24 million people in the U.S. live with COPD, and nearly 12 million of them remain undiagnosed. COPD accounts for one death every four minutes, which is more than breast cancer and diabetes combined.

(taken from bing.com)

These alarming numbers  leave many of us questioning why this largely preventable disease increases in prevalence every year.  The growth of COPD is not coincidental: if we do not take it upon ourselves to educate our  friends, family, and general  public about the causes of COPD and the importance of treatment, the death rate will continue to grow.  Though it may seem like an overwhelming feat, we must take action and urge our Representatives to allocate resources to COPD research and outreach programs.  No one will do this for the COPD Community – changes can only be made when the community galvanizes to help itself.  

The solution starts with you.

Creating change is never easy, especially when simply taking a breath is a struggle.  However, individuals living with COPD have proven themselves to be extremely resilient — so take the strength you have and do what you can to make a difference.  With every challenge, there is opportunity!! Let’s take this enormous opportunity to help find a cure for COPD. 

You can make a difference.  Here’s how:

COPD Awareness Night Follow-Up

August 26th, 2011 | Author: Katelyn Harding

As the lady walked down the steel steps to the parking lot, she was visibly shaken. Read more…

Doing His Part to Spread COPD Awareness

May 20th, 2011 | Author: Katelyn Harding

Michael Riser was diagnosed with COPD in 1995, and says Read more…

Helping Others Helps Herself

April 8th, 2011 | Author: Katelyn Harding

Katherine Labrie, a volunteer on the C.O.P.D. Information Line, says when she found out she couldn’t work anymore, she felt it was still important to give back. Read more…

The End of 2010 Brings Promise for the New Year

December 22nd, 2010 | Author: Katelyn Harding

The holidays are a time to sit back and reflect and evaluate the year past. Read more…