Posts Tagged education

Shaming and Blaming

March 7th, 2014 | Author: Fabiana Talbot

The dreaded question for individuals living with COPD is “Did you smoke?” So much is insinuated in three simple words, and so many in our community have to withstand the stigma associated with the disease.  All too often, people with COPD are afraid to reach out for help, let alone raise awareness for the disease, because they believe in the end they will be shamed and blamed for smoking.

Smoking does cause 75% of COPD – but did you know that 25% of COPD patients have never smoked? Environmental,

(taken from Pinterest.com)

(taken from Pinterest.com)

occupational, and genetic factors also cause respiratory diseases.  If you did or do smoke however, know that you are not alone. If you feel stigmatized for your condition, just reach out to our COPD community on Facebook or call the C.O.P.D. Information Line at 1 866 316 2673. What is important now is not to look at the past with regret and shame, but to the future with strength and hope. No one has the right to take that away from you.

This leads me to a piece of news that broke this week. Online news site, Mail Online, reported that late actress Shirley Temple Black was, “…a secret smoker who died from lung disease.” When she passed last month, her family did not disclose COPD as the cause of death, perhaps out of fear that she might be stigmatized for smoking.

This is just one example of an individual who had to live in silence about a disease that is the third leading cause of death in the United States. We hope those living with COPD today will come out of the shadows and help educate others about the nature of the disease. We believe the “shame and blame” culture will decline over time with greater awareness and education about the disease.

We are proud of all of our community members who speak out about COPD, and have the courage to stand up to those who may judge and marginalize us.

Have you been “shamed and blamed” for developing COPD? How did you deal with it? Please share in the comments section.

 

“Tune Up” for COPD!

March 9th, 2011 | Author: Katelyn Turner

We’re glad that so many of you in our COPD community have taken the initiative to spread awareness and education about COPD. I think it’s safe to say that reaching out to others can also be beneficial to yourself.

And, I’m pretty sure all of you have heard about the DRIVE4COPD campaign, which actually just hit the mark of screening over 1 MILLION PEOPLE for COPD! How’s THAT for awareness?

But what you might not have heard is that in addition to the 5-question pop screener they have, the D4C campaign is also having a “Tune-Up for COPD” song-writing competition! How cool!

From theboot.com

Remember in the spring of last year the COPDF launched their Faces of COPD Flickr photo contest? So many of you participated and shared your stories and photos. Now, through the DRIVE4COPD’s songwriting contest, it will allow you to embrace your creative side once again.

Billy Ray Cyrus – the newest member of the DRIVE team – along with the Country Music Association are challenging people to write the next song to promote COPD awareness. You might recall Patty Loveless’ “Drive” anthem, and they’re looking for “a song that should drive Americans to live life to the fullest and empower them to make choices to help them breathe better.”

The winner will be selected by a panel of judges including Billy Ray Cyrus, Grammy-award winner Patty Loveless, members of DRIVE4COPD partnering organizations and industry experts. The winning entry will have the opportunity to perform at the CMA Music Festival, June 9-12 in Nashville!

Don’t worry, you don’t have to be a professional to enter or to win. If you don’t submit a song, you can always view the entries online and choose your favorite! The selected fan favorite will be featured on TuneUpForCOPD.com and DRIVE4COPD.COM.!

So what are you waiting for? Get writing!

The End of 2010 Brings Promise for the New Year

December 22nd, 2010 | Author: Katelyn Turner

The holidays are a time to sit back and reflect and evaluate the year past. Read more…

USCC’s Healthy Living and COPD Webinar, Oct. 27th!

October 20th, 2010 | Author: Katelyn Turner

The US COPD Coalition is proud to present a new webinar titled, Read more…

Massachusetts COPD Summit

October 13th, 2010 | Author: Katelyn Turner

The Massachusetts COPD Summit, scheduled for November 9th, Read more…

Reaching out to Your Community is Easier than You Think

July 12th, 2010 | Author: Katelyn Turner

Since Saturday, I’ve been participating in the National Council of La Raza National Conference Read more…