Posts Tagged living with COPD

AARC’s Capitol Hill Advocacy Day–A Firsthand Account

April 14th, 2014 | Author: Aimee Bulthuis

Earlier this month, the American Association for Respiratory Care (AARC) hosted its annual Capitol Hill Advocacy Day. Over 100 respiratory therapists and patient advocates hit the Hill asking their legislators to support HR 2619, The Medicare Respiratory Therapist Access Act.  These tenacious advocates arranged over 325 congressional meetings to discuss the importance of patient access to RTs and the necessity of education for disease management.

Tabatha Dragonberry, a respiratory therapist from Virginia, attended the event and provides her first-hand account below:

Tabatha Dragonberry, RT

Tabatha Dragonberry, RT

“This is the first year that I have gone and the state of Virginia had patients join us. This bill is about the patients and getting them access to respiratory therapists in doctors’ offices and clinics. These amazing patients spoke on why they feel it is important to have access to RTs. They discussed how RTs can assist them in learning more about self-management and taking control of their disease. It was great to have them join us because in the end this bill is all about them and getting them access to RTs.

I learned that one of the patients had used his inhaler improperly for five years because in his care he was never taught the correct use. It is amazing that this happens. If you go to an orthopedic surgeon, it is a given you will see a physical therapist, but for patients with pulmonary disease they do not have access to RTs on the outpatient side. I am sure that if this patient had seen a respiratory therapist at his doctor’s office, he would have learned the proper way to use his inhaler much sooner.

Another difference this year was that I felt was that there were more positive responses from the congressional offices.  They know that healthcare is a hot topic and placing a patch here and a patch there is not going to fix the system.”

We thank Tabatha and all of the patients and RTs who spoke out on HR 2619.  To lend your voice to increase patient access to respiratory therapist visit the AARC’s Capitol Connection page.

COPD and Women

November 5th, 2013 | Author: Katelyn Turner

As you know, November is COPD Awareness Month–time to call attention to the third leading cause of death in the U.S. COPD is an umbrella term that describes progressive lung diseases such as emphysema, chronic bronchitis, non-reversible asthma, and some forms of bronchiectasis.

For women in particular, COPD is an increasing problem.

(barnastmalistan.com)

(barnastmalistan.com)

Some stats:

  • 6.7% of adult women have COPD, compared to 5.2% of men
  • COPD killed 7,000 more women than men in 2010, the 10th consecutive year that COPD has killed more women than men
  • COPD kills more women every year than breast cancer and diabetes combined
  • Women who smoke are 13 times as likely to die from COPD
  • In 2011, there were over 492,000 hospitalizations for women with COPD

This month, the COPD Foundation has teamed up with HealthyWomen.org to spread awareness and education about this disease.

Read an editorial by COPD Foundation president and co-founder John W. Walsh on their website, discussing women and COPD.

To subscribe to their newsletter, please click here.

If you want to get involved, or host an event this month, please contact us and we can get you started! Education is the key to preventing, managing, and living with COPD—for both women and men.

COPD Foundation Blog Voted One of Healthline.com’s Best COPD Blogs!

August 23rd, 2013 | Author: Katelyn Turner

We are excited and proud to announce that for the second year in a row Read more…

Do You Have a Bright Idea to Help the Millions Living with COPD?

June 18th, 2013 | Author: Katelyn Turner

The COPD Foundation (COPDF) was created to improve the quality of life for those living with COPD through research Read more…

COPDF President John Walsh: Don’t Give Up

January 2nd, 2013 | Author: Katelyn Turner

Recently, COPD Foundation President and Co-founder John Walsh Read more…

Indoor Air Quality and COPD

August 22nd, 2011 | Author: Fabiana Talbot

When breathing is a challenge, the quality of one’s air becomes critically important. Read more…