Posts in the Community Category

What is COPD? Share Your COPD Knowledge

March 17th, 2014 | Author: Katelyn Turner

You know the stats:

  • COPD is the third leading cause of death in the U.S.
  • 24 million Americans have COPD
  • 12 million Americans remain undiagnosed
  • COPD takes 1 life every 4 minutes

We’ve taken the stats you know about COPD, and put them into an easy-to-understand video, intended to encourage individuals to get their lung health tested through our 5-question Risk Screener.

We ask that you share this video with your colleagues, friends, caregivers, spouses, family members, neighbors–anyone you think it would help. Education is key to the management and treatment of COPD.

To learn more, please visit the COPD Foundation website, or call the C.O.P.D. Information Line at (866) 316-COPD (2673).

Shaming and Blaming

March 7th, 2014 | Author: Fabiana Talbot

The dreaded question for individuals living with COPD is “Did you smoke?” So much is insinuated in three simple words, and so many in our community have to withstand the stigma associated with the disease.  All too often, people with COPD are afraid to reach out for help, let alone raise awareness for the disease, because they believe in the end they will be shamed and blamed for smoking.

Smoking does cause 75% of COPD – but did you know that 25% of COPD patients have never smoked? Environmental,

(taken from Pinterest.com)

(taken from Pinterest.com)

occupational, and genetic factors also cause respiratory diseases.  If you did or do smoke however, know that you are not alone. If you feel stigmatized for your condition, just reach out to our COPD community on Facebook or call the C.O.P.D. Information Line at 1 866 316 2673. What is important now is not to look at the past with regret and shame, but to the future with strength and hope. No one has the right to take that away from you.

This leads me to a piece of news that broke this week. Online news site, Mail Online, reported that late actress Shirley Temple Black was, “…a secret smoker who died from lung disease.” When she passed last month, her family did not disclose COPD as the cause of death, perhaps out of fear that she might be stigmatized for smoking.

This is just one example of an individual who had to live in silence about a disease that is the third leading cause of death in the United States. We hope those living with COPD today will come out of the shadows and help educate others about the nature of the disease. We believe the “shame and blame” culture will decline over time with greater awareness and education about the disease.

We are proud of all of our community members who speak out about COPD, and have the courage to stand up to those who may judge and marginalize us.

Have you been “shamed and blamed” for developing COPD? How did you deal with it? Please share in the comments section.

 

Phil Everly Memorial

January 7th, 2014 | Author: Katelyn Turner

 The COPD Foundation would like to express our heartfelt condolences to Patti Everly and her family on the loss of her husband, Phil Everly. We are grateful to them for extending his legacy by making a commitment to support our efforts to eradicate this disease. We are motivated by their support to continue to make progress through research to ultimately find a cure for COPD, so individuals such as Phil will not have to suffer.

Phil passed away Friday, January 3, 2014 in Burbank, Calif. at the age of 74 due to complications from COPD. The Everly family would like contributions to be made in memory of Phil to the COPD Foundation, to help us fight this terrible disease.

Photo courtesy of Patti Everly

Photo courtesy of Patti Everly

According to the LATimes.com, Phil Everly and his brother Don made up the most revered vocal duo of the rock-music era, their exquisite harmonies profoundly influencing the Beatles, the Beach Boys, the Byrds and countless younger-generation rock, folk and country singers.

Phil Everly was born in Chicago, IL on January 19, 1939, but grew up in Iowa. He began singing country music with his brother in 1945 on his family’s radio show in Shenandoah, Iowa. Notable songs of the Everly Brothers was “Cathy’s Clown”, “Wake up Little Susie”, “Bye Bye Love”, “When Will I Be Loved”, and “All I Have to Do is Dream”. The Everly Brothers were inducted into the Rock ‘n’ Roll Hall of Fame in 1986, and were known for mixing rock ‘n’ roll music with country music. Phil Everly last performed in public in 2011, but his son Jason said he had been actively writing songs, living part of the year in Burbank and the rest in Nashville. He said his father had been in the hospital for about two weeks when he passed away. Though the COPD caused by smoking affected his health, Jason Everly said it never affected his voice. Everly married his third wife Patti (current wife) in 1999. His 2 children are from previous marriages.

The Everly family thanks you for your support in memory of their angel.

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Pennies for Penny

October 29th, 2013 | Author: Katelyn Turner

Nicole says her mom Penny was a fighter—someone who never let COPD get in her way.

“I never saw her suffer, or just laying in her bed. The day before my mother passed, we were watching a Browns football game together. She was wearing a Browns t-shirt and hat, and it was 14-0 [Browns were losing], fourth quarter. All she kept saying was, ‘the Browns still have a chance to win,’” Nicole recalls. “She was in such good spirits right up until her last days.”

After her mom passed away, Nicole felt as though she had to do something to honor her.

Nicole and Penny

Nicole and Penny

“My desire has always been to give back, and do something for people who had COPD. I saw how the disease took over my mother and I wanted to do something to support those [living with COPD],” Nicole says.

That’s where “Pennies for Penny” was born—out of Nicole’s desire to help others. She reached out to friends, family, and co-workers to garner feedback, and created her first fundraising tools, a Bingo game that features sayings from Penny, and a Penny trivia game. Nicole used these at her first fundraiser September 28th. She’s planning on hosting a second fundraiser, a pancake breakfast, during November—COPD Awareness Month.

In addition to hosting fundraisers, Nicole, who lives in Cleveland, OH, says she also set up a FirstGiving Page with the COPD Foundation, encouraging friends, family, co-workers, etc. to donate what they can.

“I want to do something all year-round. Cleveland Clinic is a big hospital here, and I’ve been thinking I’d eventually like to work at the pulmonary department there. I am looking to work in public health, once I complete school,” Nicole says. She’s currently majoring in business management as a local community college.

She says her mom loved to spend time with family, including Nicole’s children Butchie and Eleah, and made others so happy—so it’s nice to see others step up in memory of her.

“That’s why I want to go into public health to help people like my mom—I want to follow my vision and make it happen,” Nicole says. “I think anything starts off with a  vision. If you have the passion to do it, your vision will come to you.”

“I had no idea what to do when my mom passed. First, it was like, ‘she’s no longer here.’ After that, I thought, ‘let me do something to honor my mom,’” she says. “I miss so many things about her, but my love and compassion keeps me going.”

AARC Respiratory Care Week 2013

October 21st, 2013 | Author: Katelyn Turner

This week marks the American Association for Respiratory (AARC)’s Respiratory Care Week.

The AARC and its members ask you to join them for this annual event that recognizes the respiratory care profession and promotes awareness of lung health issues and practices.

(www.trinitytwincity.org)

(www.trinitytwincity.org)

This week, the AARC is asking you to:

  • Host activities to honor and reward respiratory therapists for their contributions
  • Encourage patients and their families in their battles against lung disease
  • Spread awareness of lung diseases such as COPD to the broader community
  • Build the desire in others to enter the respiratory care profession
  • Maximize personal and professional skills with new resources

We also remind you to take the time this week and thank your respiratory therapist for all the work they do to help the COPD community. 

For more information about Respiratory Care Week, click here.

Change Your Attitude

September 27th, 2013 | Author: Jim Nelson

This blog post was written by Jim Nelson, an individual living with COPD. Read more…

What Does the Affordable Care Act Mean For You?

September 25th, 2013 | Author: Aimee Bulthuis

Read more…

COPD Foundation Blog Voted One of Healthline.com’s Best COPD Blogs!

August 23rd, 2013 | Author: Katelyn Turner

We are excited and proud to announce that for the second year in a row Read more…

Find Health Coverage at Healthcare.gov

June 28th, 2013 | Author: Fabiana Talbot

Healthcare.gov has rolled out a new website featuring the Health Insurance Marketplace Read more…

Do You Have a Bright Idea to Help the Millions Living with COPD?

June 18th, 2013 | Author: Katelyn Turner

The COPD Foundation (COPDF) was created to improve the quality of life for those living with COPD through research Read more…