Chuck and Joe

A COPD Story Comes Full Circle

Joe Morrison has a unique COPD story that has come full circle. Read more…

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Should I See a Pulmonary Doctor?

Dear COPD Coach,

I have a question I hope you can help me with. Read more…

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“COPD Digest” – Online Edition Update!

The COPD Digest website has been updated!  Have you seen the new site? Read more…
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Breathless While Eating

Dear COPD Coach,

As my COPD gets worse, I find I am getting Read more…

Healthy and Active Living with COPD

May 14th, 2012 | Author: Fabiana Talbot

It’s important for every individual with COPD to maintain an active lifestyle. By being physically active, you’re helping both your mind and body. Your COPD may restrict some of the activities you used to do, but it shouldn’t stop you from doing many other things. And keeping your body active, either by exercising or in pulmonary rehabilitation, you’re improving your lung function and state of mind. Your doctor or respiratory therapist can help find the best routine for you and give you the encouragement you need.

Try to maintain a healthy weight. Based on your doctor’s recommendation, you may need to gain or lose weight. Heavier individuals may find it easier to breathe if they lose some weight, and lighter individuals may need to gain weight so they don’t lose too much weight during an exacerbation. Talk to your doctor about what your ideal weight should be and design a reasonable weekly exercise regimen so you can work towards your goal. It also doesn’t hurt to eat healthy snacks and drink lots of water.

Avoid germs at home and during outings. Wash your hands often, and avoid touching your mouth, eyes, and nose. This helps prevent spreading germs into your body.

Rearrange your home. Put the objects you use the most in easy-to-reach places. You can also purchase many useful products that will help make moving around much easier for you, such as shower stools. These products and gadgets can help make some tasks much easier for you, and if basic tasks take less effort, you will be able to do more things you enjoy!

Other useful tips for healthy living include:

  • Get plenty of sleep. When your body is tired, you’re more likely to get sick.
  • Avoid getting fatigued by doing a little at a time. Take your time, and don’t be afraid to ask for help when you need it.
  • Call your doctor at the first sign of a cold. It’s good to keep your doctor informed of any changes you experience.
  • Stay busy. Pick up a new hobby. It’s never too late to start something new!
  • Learn all you can about COPD! Talk to other COPDers and become educated so you can take charge.

taken from copdfoundation.org

Make Your Voice Heard!

May 9th, 2012 | Author: COPD Coach

Dear Readers,

First of all, many thanks for the kind letters and responses you have been sending in! We really appreciate the fact you took the time to get involved!

Speaking of getting involved, there are a lot of patients and caregivers of COPD out there, with many of the same fears and frustrations that you may have or had. The Coaches Corner was designed to provide those in our COPD family with information, solutions and encouragement. Everyone reading this blog has confronted problems that others might be experiencing and are looking for a solution. The point is, your voice matters.

The COPD Foundation was founded to give the COPD community a voice. But, there is just so much more that can be done. Of all the major diseases, COPD consistently receives the lowest levels of funding for research. There are still problems with access and travel, new treatments can’t be discovered fast enough, and if someday we are to find a cure. Our voices have to be louder that ever!

I realize that for many of you, it is often a struggle just to get through the day. However, maybe you could find the time to write a letter to your congressman, or state representative? Do you have the ability to speak with local groups about your experience with COPD?  Would you be able to do some basic research, monitor websites or help respond to letters from others with COPD? None of these things seem overwhelming, but can make a huge difference not only in the treatment and outcome for those already diagnosed, but those who remain undiagnosed. Your voice, your efforts, and your passion will ultimately determine if COPD will get the funding it deserves, a life will be touched because someone cared or another successful treatment will be developed.

We cannot be content to sit back and allow others to do the work when we still have a voice to share. Our challenge to all of you is to get involved! If we can work together, maybe our children or grandchildren will not have to face the life we live. If you have a little time, and a little energy, take a moment and write us an email telling us you want to get involved. The email address is: coachescorner@copdfoundation.org.

You can get involved as one of our COPD Coaches, work on our C.O.P.D. Information line or become involved in our advocacy programs. You can give as much time as you want or can give. I assure, any time that you are able to devote WILL change lives (and maybe make you feel a little better about your own). Experience is not required, just a willingness to share your voice and time!

I once heard it said that when a man or woman shall die, their life will not be judged by the earthly wealth they have obtained. Rather, their life will be judged on the lives they touched. And if they shall have touched but one life, and in doing so, changed that life for the better, they shall have truly have died wealthy in that which really matters. This is your opportunity to truly make a difference! COPD shouldn’t be our legacy, or the legacy of our future generations. If there is to be change, let it start with us!

Please consider what is written here and contact us! Once again the email address is coachescorner@copdfoundation.org. Come join our family and participate in our journey as we seek to find a cure!

Best regards,

The COPD Coach

“Two Are All You Get”- Express Yourself!

May 7th, 2012 | Author: Fabiana Talbot

We receive tons of mail on a daily basis here at the COPD Foundation’s DC office.  Donations, questions, thank you notes, original artwork and music — a wonderful variety.  The other day we received a lovely poem from Ed Shibley from Springfield, Mass.  Read his touching words below and share your creative works with us as well!

“Two Are All You Get”

COPD moved into my life fifteen years ago,

Dr. John Landis was first to let me know,

Medical help I needed, Dr. Landis was the one

Following his direction is what I’ve truly done.

Dedication of Dr. Landis is reason I walk this land

He has pledged life to doctoring and COPD end.

He tells with conviction, certainly a fair bet,

Pay attention to your doctor, “Two Lungs Are All You Get.”

Is breathing difficult, making you feel weak?

Sit and rest he tells, if need, your doctor seek.

Rest is effective walking each day is too,

Keep a proper diet and smoking is not for you.

Habit yourself to deep breathing, exercise your lungs,

They’re hearts fuel tanks and needed so body runs.

Be on time taking medication, please don’t forget,

Lungs are your life, “Two Are All You Get.”

Dr. Landis suggests therapy a physical must,

Group exercise works well, this you can trust,

COPD can make you wonder how long life will last,

Listen to your doctor, you’ll long live to have a blast.

Rewards from prayer is no secret, Nay, not by far,

Keeps form thinking illness or how bad off you are.

Exercise within means, feel great, enjoy conditionpink,

Can’t do it, sure you can, bits daily is the winning link.

As years progress with time passing you’ll have no regret,

Realizing then as now, “Two Lungs Are All You Get.”

Gripped by COPD and in a daily state of fear,

Treat it as a friend with loving care, hold it dear,

Abiding by your doctor winds you a pleasing high,

And physic yourself up morning when in bed you lie.

Practice meditation a highly proven way,

Keeps COPD locked in storage every single day.

Though doctors may council and guide you through,

Controlling COPD life is really up to you.

Found pleasures helps eliminate a devastating fret,

As is remembering, “Two Lungs Are All You Get.”

Read more…

May is Asthma Awareness Month

May 4th, 2012 | Author: Katelyn Harding

Did you know that May is Asthma awareness month? What does asthma have to do with COPD?

More than you may think. COPD is mistaken for asthma frequently, and that’s because the two can overlap. It’s possible to have a component of both.

The main difference between the two is that COPD is airway obstruction that is not reversible, or not fully reversible. Most cases of asthma are indeed reversible. With that said, there is a fair percentage of people with asthma that cross over that boundary into COPD. In some individuals, years of asthma flare-ups and lung irritation can cause permanent changes in the lungs, leading to COPD.

According to the U.S. Environmental Protection Agency, asthma negatively impacts quality of life for more than 24 million Americans, including more than seven million children.

Asthma is a serious, sometimes life-threatening health issue that can be triggered by environmental irritants such as smog, smoke and chemicals, as well as contact with substances that generate allergies, including dust mites, cockroaches, molds and pollens. Asthma affects the lungs and causes repeated episodes of wheezing, breathlessness, chest tightness and coughing.

This May, let’s join together to increase public awareness of asthma – its symptoms, triggers and treatment — and foster a greater understanding of lung health and how to avoid lung-related diseases.

A source of help and information is our COPD Information Line 866-316-COPD (2673), which is staffed by individuals who are living with COPD and who are well equipped to answer any questions you may have. The line is open from 9AM to 9PM (EST).

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