The COPD Foundation Blog Has a NEW Home!

May 1st, 2015 | Author: Katelyn Turner

As you probably know, the COPD Foundation launched the COPD360social.org networking platform in November 2014. The site is an invaluable resource by serving as a one-stop-shop for COPD: access quality educational materials, participate in research, become an advocate, and connect with new friends. It allows us to meet, chat, collaborate and support one another- and now you can read the Faces of COPD blog posts on COPD360social.org! We want to hear from patients, caregivers, and professionals daily.  Your thoughts, concerns, fears, and inspiration- become a part of our interactive, collaborative community to friends, learn about events in your area,COPD360ourcommunityonline_AAcard chat with the experts, and learn how to take action- all on your time, at your pace. At COPD360social you can:

  • Create a personal profile describing yourself
  • Get to know others with COPD
  • Ask a question
  • Start a discussion
  • Share your story
  • Comment on a blog
  • Access educational materials
  • Find out about COPD events in your area and across the country
  • Find a pulmonary rehabilitation program near you
  • Find a breathing support group near you
  • Make a difference through research
  • Have a voice in policies and laws
  • Be inspired!

There is a lot of information on the internet. Sometimes it can be pretty overwhelming. It can be hard to know what’s true and what’s not, and which are proven treatments and those that don’t have scientific support. With COPD360social you can be confident you are getting quality information from a trusted source. Join COPD360social, because we are stronger when we work together. Visit www.COPD360social.org to create your profile and access future COPD Foundation blog entries.

COPD 9 Patient Education Workshop will Inform, Inspire and Empower Patients!

April 9th, 2015 | Author: Jane Martin

Something very special will be happening in Chicago this June, and you’re invited. The international COPD9USA conference is a unique medical conference where top researchers, health care professionals, and patients, family members and caregivers not only co-exist in the same space, but are encouraged to interact – and even ask tough questions.

COPD advocate Grace Anne Dorney Koppel will facilitate the workshop. Diagnosed with very severe COPD in 2001, she crop continues to live a full, rewarding life in spite of her diagnosis. Internationally-known COPD experts Barbara Yawn, MD, Bartolome Celli, MD, Paul Simonelli, MD, PhD, Keith Robinson, MD, Stephen Rennard, MD, Barry Make, MD, Scott Cerreta, MS, RRT, and Mr. John W. Walsh will talk with the audience about COPD Basics, Over/under Diagnosis-Over/under Treatment of COPD, Individualizing COPD Care and a look at the Past, Present and Future of COPD.

COPD9USA will take place on June 5-6 at the Hyatt Regency O’Hare hotel – 9300 Bryn Mawr Ave Rosemont, IL 60018. Free valet parking is available for patients on a first-registered-first-served basis.

Register today by calling 1-866-316-COPD (2673) or visiting our website.

Smoking and COPD – We Can Help

January 7th, 2015 | Author: Katelyn Turner

The Centers for Disease Control today reported that close to half of U.S. adults over 40 who live with asthma or COPD still continue to smoke. The information follows a recent CDC report which found that 15 percent of Americans between 40 and 79 years of age suffer from an obstruction of the lungs, such as COPD. The study concluded that 46 percent of adults between the ages of 40 and 79 with COPD currently smoked, with the statistic rising to 55 percent of individuals with “moderate or worse” levels of the disease.

[http://www.cdc.gov/nchs/data/databriefs/db181.htm]

[http://www.cdc.gov/nchs/data/databriefs/db181.htm]

Researchers found that rates of smoking for individuals with COPD and similar diseases more than doubled that of people who do not live with such illnesses.

“Cigarette smoking is the most important, but not the only, risk factor for COPD in the United States. The single most important intervention a smoker with COPD can do is to stop smoking. However, COPD often progresses in patients long after they have stopped smoking, and up to 25% of people with evidence of COPD have never smoked. The COPD Foundation continues to pursue better strategies to prevent, treat, and some day, cure, COPD,” said David M. Mannino, M.D., member of the COPD Foundation’s Board of Directors and Professor at the University of Kentucky College of Public Health.

The COPD Foundation is committed to assisting those who live with COPD and their efforts to quit smoking. The Foundation recognizes the various challenges our community members face and offers peer-to-peer support for those who wish to quit. If you live with COPD and would like to speak with someone directly about your options, please call our C.O.P.D. Information Line at 1-866-316-2673, Monday-Friday, 9 a.m. – 9 p.m. EST. You may also visit www.COPD360social.org for online peer support.

For more information about smoking cessation, please visit the COPD Foundation website here.

Read the full CDC report here.

Running for his Father and the COPD Community

January 5th, 2015 | Author: Katelyn Turner

Justin Daniels is a distance runner from Richmond, Indiana who is dedicated to honoring those who live with COPD by racing in all 50 states in 2015. He started his hobby when his father Leonard, 60, was diagnosed with COPD. “His lungs don’t work very well, so I am making it my mission to spread awareness about this disease,” Justin says. “I set up a booth at each event I am running with information that I am able to pass out to anyone wanting to know more about what I am doing. My mom helps pass out the information while I am running my races, but before and after I am at the booth or walking throughout the area asking people if they know someone living with COPD.”

The COPD Foundation caught up Justin to learn more about his efforts:

Q: How long have you been a runner?

A: I started out running while I was in high school as a Junior and Senior where I was a member of the cross country team as well as the track team. I started getting serious about distance running in 2011 wfaces1hen I found out  my dad had COPD. I felt like I needed to do something not only for him but for everyone else living with the disease. I knew there wasn’t much I could really do besides make people more aware of what COPD actually is, as well try and raise money to help find a cure.

Q: How did you get involved in raising awareness for COPD?

A: I feel there are so many people living in the United States alone that know nothing or very little about what COPD is and how they can get treated to live a better life. I have worked at Reid Hospital in Richmond, Indiana for almost 2 years now and I see a lot of COPD patients in the ICU. I feel that with increased education they might be able to avoid a trip to the hospital and could have a better chance at living a more normal life.

Q: When you started your endeavor two years ago, what was your main goal?

A: When I first started doing the marathons 2 years ago, my main goal was to run a marathon in honor of my dad and everyone else living with COPD. After running that first marathon I felt like I couldn’t do another one because of the pain I was in, but after awhile I thought about how my dad and everyone with COPD endure a lot more pain, so I continued.

Q: What are your goals now?

A: My current goal is to run a marathon in all 50 states; I would like to do this as soon as I can. On November 1st, 2014 I completed my 4th marathon – my biggest and toughest race so far. I raced the Chicago marathon on October 12th, 2014 and I wanted to see how I would feel after only taking 2 weeks off. I actually felt really good, so now I know I can run races closer together. I feel running in every state will give me a chance to spread the word and pass out information to as many people as possible –  just in case they have symptoms so they are able to get checked out by their doctor. It also gives me the chance to meet COPD patients that live with the disease on a daily basis. I want the races to give patients hope and reassurance that there is someone out there taking action to give them a voice.

faces2Q: What inspires you to continue racing for COPD awareness?

A: My main inspiration to keep running to bring awareness to COPD is my dad and the millions of people living with COPD each day. My dad and I have a very close relationship with each other. Every other person with COPD has family that care about them as well. I feel this is the least I could do to honor them the best way I can. On days when the weather isn’t perfect or I’m too tired, I look around and think,  “My life’s not so bad,” which then inspires me to get out the door and go.

Q: What advice do you have for others who would like to take similar action?

A: My advice for anyone who would like to take action is to research as much information you can so you have knowledge of what the disease actually is. I also think whatever you choose to do to make people aware, make sure you give it 110% all the time, even when you think it may not be possible. You can achieve anything if you really want to – it just may take more time.

You can find Justin’s “Run for a Cure” Facebook page here.

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